This girl. She has kept us on our toes since long before she was even born, throwing us twists + turns at every opportunity, but I wouldn’t have it any other way because truly she is the light in our lives.

For those of you that have been following along with our journey,  you know that we experienced a very scary high-risk pregnancy with Emmy. If not, here is the VERY short version: Emerson has a very rare genetic abnormality called a microdeletion. Basically, she is missing a tiny section of genes on Chromosome 15, but they have no idea what it means because there is no record of anyone else with the same deletion. No one.

We had a one-year check-up with the amazing Genetics team at Children’s Hospital Colorado this week. Emmy is meeting all of her milestones and by all indicators she is in perfect health. She is not walking yet, but according to the Genetics team, they have a very low threshold for children with genetic abnormalities and wouldn’t be concerned until about 18 months. We have some additional follow-up tests to do as a precautionary measure including an echocardiogram, as well as ultrasounds of her kidneys + liver, but so far, everything looks perfect.

A little over a year ago, I had no idea what to expect but our little EmmyLu continues to be a miracle that defies the odds. There are no words to accurately describe just how grateful my heart is. Thank you to everyone for your ongoing love + support, but especially your understanding when I seem to fall off the grid for awhile. It certainly has been a wild last 18 months, so thank you for sticking with me.

One day at a time.